Thursday, 3 May 2012

The pain has won!

Today is not a good day! I am in agony! I am sitting with a blanket round my legs, feeling very sick, giddy and unable to do the smallest tasks! Luckily I have done most of the jobs I wanted to do, although the shopping still needs doing, but Rich and I are going to do that tonight! I think by this evening I will be glad to get out of the house! I am struggling to type this morning because it hurts to straighten out my fingers, I am also having problems with my hips and shoulders 'clicking', which in turn makes me feel nauseous! Oh the joys of arthritis with Fibromyalgia, it really is a pain in the proverbial!

I also did not sleep well last night, and do feel very irritable today! Luke and Abby have just left to go to the Cinema, so I am now on my own. Luke, bless him, made me some toast and a cup of coffee before he left and asked if there was anything he could do! I have my coffee in my nice new Harry Potter mug that he bought me at the Warner Studios tour, I love it! It is brilliant because when you put a hot drink in it, little footsteps start to appear and move around the mug until it reaches the wonderful Marauders Map that Harry had in the films! It is now my pride and joy - I just love Harry Potter! Which now has me wanting to watch a film, so I may now put a film on and enjoy a chilled out day! They also bought me some chocolates from Windsor Castle and a Lego Jessie Key Ring from Legoland. They are such a thoughtful pair, always thinking of others!

Luke and Abby arrived home last night after a wonderful few days in Windsor, they stayed at the Macdonald Resorts Windsor Hotel, which was apparently incredible, and visited Windsor Castle, which they could see from their hotel room, Legoland and the Warner Studios Harry Potter Tour. They really enjoyed their break, and I am so pleased that they managed to have some time to themselves.  Although Luke is my son and I am a little biased, I have to say that they are a very special couple. They have been together for six years this June, and Abby has been away at University for four years of that, and Luke has supported her, encouraged her and always been there to listen to her worries. As she said when she graduated last year, Luke has been as much a part of this degree as she has! Abby has also listened to Luke when he has been having a tough time, supported him, guided him and kept him calm. They make an incredible couple and I for one hope that they will be together for many years to come.



Top picture: Luke and Abby on the Windsor bus tour!
Bottom picture: With Windsor Castle in the background!



Top picture: Windsor Castle!
Bottom picture: The guards at Windsor Castle!

Luke and Abby - A lovely couple!


Abby with the Legoland People!



Luke with a lovely Legoland Chewie! They had a whole section of Star Wars!



My lovely Harry Potter Mug! Sorry it is a bit blurred!!

I have not yet got any of the pictures from the Harry Potter tour, but as soon as I do, I will put them on too! They were absolutely thrilled with the day there, said it was worth every penny, and they also said the attention to detail was incredible! I cannot wait now to go! I am hoping that we can go there for my birthday in September, no presents, just a couple of days away in a nice hotel and a visit to Harry Potter would do me! They did say there was a lot of walking, but it is Wheelchair friendly so I may hire one for the day! Better safe than sorry!

As I type this blog, I can feel myself almost drifting off to sleep, I feel very tired because yesterday I did far too much! I will never learn! The minute I have a burst of energy or a day where the pain is not so severe, I end up doing far too much!! But I will get through this, I will improve, and I will get things done today, I just wish that there was someone out there who I could talk to, who would understand how I feel, who would care about how I am feeling, withough making me feel that I owe them something! This is where I miss my lovely mum, she always had time for me, listened to me, advised me, she loved me unconditionally, and I loved her with all my heart! Miss you mum! Sleep tight, and give dad a big hug for me!




Wednesday, 2 May 2012

Survival of the Fittest!

I survived the night on my own! I didn't sleep particularly well, every noise seemed to be louder than usual, and it was quite windy which also gives me the creeps! But I am ok, tired, but ok!

I slept until 9.30, then got up and sorted out the ironing ready for collection, but I have so much to do I don't know where to start! But I will get it sorted, eventually!

I think it is going to be one of those days, although it is no longer raining, I am in quite a bit of pain, the hip pain has not subsided for some time. But I can't take any more meds until about 2 p.m., currently it is 12 noon! It is going to be a long two hours.

I spent some time yesterday scanning old photos and putting them on Facebook.  My niece, Jenna, the one member of my extended family that I speak to, has had some laughs looking at them, and I hope that she also enjoyed seeing the pictures of her Nan. As she was her nan's only grand daughter, I know that she would have been very proud of her.  Like many people in the current economic climate Jenna is having a tough time, and I know that other things have made her life tough too. It is not my place to put it on here, but she knows I am here for her, and always will be! I lost touch with Jenna for a long time, and found her again through Facebook! Thank you Facebook - you get bad press all the time, but many people have found long lost friends and relatives because of you, shame that doesn't make the press too! 

I am sitting here with a very strong coffee, trying to get myself sorted, my head feels like it will burst, and I know there is so much to do, so I am going to get off here now and do it! I might not get everything done, but it will still be there tomorrow, and as the saying goes 'tomorrow is another day'!

Tuesday, 1 May 2012

Terrible Tuesday!

I am in so much pain today that I don't know what to do with myself! I have things to do, but no energy to do it! I want to wrap myself up and not speak to anyone, not do anything, and just wallow in misery! But, my mum would have told me what she always told me 'pick yourself up, dust yourself off, and start all over again' and she would also have said 'stop feeling sorry for yourself, there are people in the world worse off than you'! My mum, bless her, was my rock, I loved her with all my heart, she always knew the right things to say and do to pick me back up, and the four years since she died have been the hardest of my life! When she died, I fell apart, and although I have a brilliant hubby and two incredible sons, I miss her! I still to this day have not gone through all the paperwork from her house, I cannot bring myself to do it yet, because I know I will fall apart again. There is such a void in my life, and I think that will never be filled. My mum was the best, and I will always miss her.

This month would have been her 86th birthday, she was born on 24th May 1926, in Scotland, the eldest of eight children, and she was a very intelligent woman. At the age of 11 she won a Scholarship to go to Bathgate School, which was the equivalent of a Grammar School today. Unfortunately her parents couldn't let her go because she was needed at home to help with the other children and to go to the school she would have had to spend 4 hours a day travelling. She had 3 sisters and 4 brothers. She went into the army at the age of 18, which was in 1944, and she became one of very few women who became a Sargeant and she used to be one of the people who shot down enemy airplanes during the second World War! She was always a brave woman! In 1947, when the war was over and she turned 21, she married a man called Fred Lapworth, and she was with him for just 18 months. They lived in a mobile home near to Fred's mother (who still ruled him!), and he treated my mum very badly! The final straw came one day when he beat her and she got up and walked out that same day! She was in England, knew nobody, and had to get a job and somewhere to live. She became a bus conductress and lived in a B & B. During the time that all this was happening to my mum, my dad was having problems too. His wife of 5 years had left him, taking with her their baby daughter of 3 months, but leaving behind two daughters who were at that time 4 years and 18 months. My dad had to turn to his family to help him, and as he was one of 12 he had plenty of people to call on! He was a bus driver at the time.


My lovely mum, in one of her fun moments!
As I am sure you have guessed by now, my mum and dad met 'On the Buses' (great title for a TV programme!!!) and as the saying goes the rest is history!! They met in early 1949 and my mum moved in with dad! They were, in fact, 'living in sin'!! By July of 1950 my sister Liz was born, closely followed by my brother Brian in September 1951! My mum also took on the two girls left behind, Margaret (born in 1944) and Pam (born in 1947).  They had a houseful, but my mum was happy to just be cared for and loved, something she had seen little of throughout her life. Their difficulties didn't end there though, Margaret and Pam's mother returned in 1950, not long before Liz was born, and told dad that she didn't want the baby anymore. My dad, and my mum, without a second thought, took the baby from her, only to find out just a couple of days later, that she was ill. She was rushed to hospital and sadly died. The cause was neglect!! My mum and dad, although they told the authorities what had happened, were then put under scrutiny and were in danger of losing all of the children. The bitch that was my two half sister's mother, then contacted social services and tried to get the two girls off my dad! She was an evil woman! Thankfully family, friends and neighbours rallied round my mum and dad and told the authorities exactly what had been going on, and after a difficult few months, they were cleared of any wrong doing and were given full custody of the two older girls, and were left in peace! By this time Liz had been born and mum found out she was expecting my brother Brian. Over the next 5 years mum had three miscarriages, and then in 1957 I was born. I was to be the last child they had. During all this time my parents were not married, and in fact my dad was not divorced from his first wife, mainly because they did not have the money to pay for it! During all this, my dad actually found out that the baby his first wife took with her was not his, but the lodger's that she had run off with, and that she had left him in approximately £3,000 of debt, which back then was a lot of money! He had been handing over his pay every week and she had been living the high life with the lodger and not paying the bills! As I have already said, she was an evil woman. So basically, my mum took on a man with two children, bad debts, and then lived in sin with him and had three illegitimate children! Today that would be the norm, back then we were sometimes shunned and it was frowned upon!


Me with my lovely mum in the garden enjoying the sun and a beer! 

Eventually, actually exactly one month before I got married (14th May 1980), they did marry, mainly because my mum told my dad that it would be nice if she could be married before the last of her children were!!! Quite a character my mum, but she was an absolute star when it came to raising us all. We never wanted for anything, we had food on the table, we had clothes on our backs and we had a family holiday every year, more than most children did back then!

You may wonder why I tell you all this, and the reason is this, when my dad died he had been ill for some time, had in fact just a year before his death had a triple bypass and when he was in hospital waiting for this operation, he asked me to promise him I would look after my mum if he didn't make it. I told him he didn't need to ask, she was my mum and I would always care for her. And this I did! After he died in 1991, I cared for mum, not out of duty, but because I loved her, she was my mum. Shame the rest of her children didn't feel the same. To be fair, Margaret lived in Italy, so couldn't help much, but she did financially support mum (as she did her husband Terry's mother) and gave her an 'allowance' of £50 per month! Pam had never really got on with mum, and after dad passed away she saw mum for the first couple of years but then decided she wanted nothing more to do with her. At the time of mum's death Pam had not seen her for 15 years. My sister Liz had a drink problem, as well as many other hang ups, all of which she blamed on mum, and she had on two occasions attacked my mother, knocking her to the ground. My brother Brian was a typical man, he left it to the girls! So my mum, seven years after my dad passed away and 10 years before her own death, changed the will she made just after Dad passed away and left everything to my two sons, Aaron and Luke. Although she had seven grandchildren, two of those were Pam's children, and she had not had contact with them (they were told by their mother to have nothing to do with her, as were their children - mum's great grandchildren) for 15 years, Liz's boys had not had contact with mum for years, and my niece Jenna (who was the only one who showed any common sense and other than my two sons was the only grandchild to attend her funeral) because she was estranged from her dad, had lost touch with all of us. I would also like to point out that Jenna, on the day of the funeral, had made a comment after listening to the grumbles of Liz and Margaret, that she had never expected anything from her Nan as she had not seen her for almost 13 years, a family member with some morals, quite a novelty!! I had known about the change of will for some time, as had Liz, but when I told the others (Pam did not attend the funeral, she had told me years before she would not as she did not see my mum as her mother!!!) the proverbial hit the fan! Margaret lost the plot, Brian soon became her puppet and pestered me on her behalf, Liz did what she always did and hit the bottle, and bit by bit they made me realise I did not want to be part of that family. My mum left me a notebook with her insurance policy, telling me all that she wanted for her funeral, and to say that she had the last laugh was putting it mildly! As well as leaving everything to my two sons (the others believed it was being split 6 ways - Margaret's dead husband Terry was also included because of the financial support they gave mum and dad), mum had said that she wanted myself and my husband and sons in the first car with Margaret, and she wanted myself and my sons to speak at the funeral. This did not go down well, and neither did the fact that she also didn't want Pam mentioned in the Obituary. After years of being treated badly by her children, mum's wishes were her getting even to a degree, and I for one don't blame her. There is a lot more that went on, but I can't go into it on here! Maybe I should write a book, because our life has more to it than any soap opera!!

My lovely mum with Luke, one of the many Christmases she spent with us!
After caring for my mum for 17 years, taking her shopping, doing her housework, having her here every Christmas, Easter, Bank Holidays, many Sundays for a meal, and talking to her on the phone every day, organising her funeral as requested was the last thing I could do for her, and I was not going to let her down. So I followed her instructions to the letter. This resulted in my 'sister' Margaret asking me the week before the funeral 'what are you going to tell me now' and stating that 'your mother was an evil bitch when she was alive, and she is carrying it on even now she is dead'. She also paid me a compliment and told me that 'you are just like her'!! It was at this point that I decided after the funeral I would have nothing more to do with any of them. They were not my family, in fact if I hadn't looked so much like my parents, I would have been convinced I was adopted! So after the funeral, they went their way, I went mine, and to this day I have not seen them since. I did however receive a very nasty letter from Margaret (who lives in a house worth over three quarters of a million, has no mortgage, and no children) stating that she wanted £20,000 from mum's estate as this was what she had worked out she was 'owed' from the 'allowance' she had paid mum over the years! I did take the letter to the solicitor and he laughed, because she had put 'allowance' in the letter, she would have no leg to stand on!  But I did make a decision to write back to her, so I sat down and wrote a list of all the weeks I had done mum's shopping, her housework, done her banking, had her here for a meal, taken her on holiday and all the Christmases and Bank Holidays she had been here, and I totted them all up and put down how much this was worth, and the amount was - PRICELESS! I never heard from her again, I wonder why!!!!

Sunday, 29 April 2012

Pain in my hips!

I have been in agony today with pain in my right hip! I have never had pain like this before, and to be honest, it is really difficult to walk on! I am hoping it is only temporary, as I have a very busy week ahead!
My other concern is that for two days I am going to be on my own! Luke is on holiday and Richard, in his usual inimitable way, has booked himself out and is away Tuesday night! It is a long time since I have been left alone and I will admit that I am worried. I know this sounds daft, but it concerns me greatly that should I be really unwell with my Fibro, I have nobody here to help me! And one of the things that makes my Fibro worse is stress! Why are men so stupid, why do they think only of themselves (and I mean Richard, not Luke, his holiday was booked months ago, Rich booked this appointment last month!!), as someone who is self employed it is up to him when he works, so he could have arranged this appointment for a different time!
With the added worry comes the problem of walking the dog, with the weather as it is right now, I am not very happy about having to walk her, but it will have to be done, you cannot expect a black Labrador to go without her walks! However, I will carry on, and hopefully all will be well!
I have spent a bit of time today sorting through old photo albums that Luke got out of the loft for me. Wow it was an eye opener! Some of the pictures go back to when I was a baby, and pictures of me as a young girl, it was strange seeing them!
These are the pictures, and because they have been stuck in a book, I daren't remove them for fear they will fall apart so please excuse them being so small!

 The pictures above are of me as a baby, about 1, and then me aged 7 at school!

These pictures above are various ages, me as a baby in my crib, I am the one on the left at the front on the next picture with my sister Liz and the girls on the right are Laura and Janis, my mum's friends children, then me in the daft hat with my pushchair, and the bottom two are of me on holiday in Blackpool, playing on the trampolines! The picture below is me with my wonderful mum, at Stanley Park in Blackpool. 




The picture below is the school photo when I was at Dunsmore, and I am 7 rows from the front, 8 in from the right handside of the picture! See if you can find me!!



The picture below is when I was about 17, with my friend Sheila, who I am still in touch with today! In fact we went on holiday together last year! We had been to the pub on a Saturday lunchtime and afterwards we went to Woolies and had our pics taken in the booth! The daft things you do when you are a teenager!


The picture below is me and my hubby, this was taken in 1982, when our friends Alan and Karen, got married. I was Matron of Honour, as I was already married, and hubby was Best Man!


As I looked back at these pictures I realised just how lucky I was, I had a lovely childhood, I had a great time growing up as a young girl, with some great friends, and now I have a wonderful hubby and sons! For all my problems with my joints, my pain, my difficulties, I am blessed, and this is how I will cope with my difficult week ahead! 

Saturday, 28 April 2012

Saturday Speeds by!

Can't believe it is Saturday already! The week has flown by! Have had an exciting weekend so far, went to Leamington last night to see Jethro, the Cornish comedian, and what a fun night it was! He is still as funny as he was when we saw him first, which we last night worked out was 22 years ago! Jeez I am getting old!!! We first saw him at St. Mabyn Caravan Park, back in 1990, we stayed there 3 years running and it was a great place! The weather was always warm, the kids loved it there, although the first year we went Luke was not even born, and it had a great clubhouse, served good meals that were reasonably priced, and had great entertainment on each night! Jethro was one of the entertainers! Rich has been a huge fan of his since then, has all his DVD's and we have wanted to see him live again for a long time!
There was also a great singer on with him, a chap called Shaun Perry (www.shaunperry.co.uk) who had a lovely melodic voice and sang a really good mix of old and new songs! Jethro also sang with him, and also has quite a good voice! It was great too that in the interval he sold CD's of his music, and he came out and spoke to everyone, he was a really nice chap! Needless to say I bought a CD!
I really enjoyed getting out, but after about an hour, I did start to ache somewhat, and I could feel the discomfort slowly creeping up my spine! Thankfully we had front row seats, so had plenty of room to spread out, otherwise I don't know if I could have survived the whole evening! This has made me think about my trip to Spain in June, we are going by boat so we can take Jess, and we have two quite long drives either side of the boat trip! I am now dreading it! But, I will not be defeated, I will fight it all the way, I just hope that the fight stays with me for the whole trip!
Unfortunately, as I mentioned in my last blog, the dark side of Fibro has taken hold this week, with me forgetting I had put potatoes on to boil, and going off to do something else. This week ahead is going to be a test, because I have a very busy one! I have a barbecue next weekend for some friends, and it is going to be rather hard going with a lot to do! I don't want to leave it all to Rich, so I am trying to get organised and do a bit of shopping online to save him having to do so much and doing some prep during the week! My first job I have decided is to sit down tomorrow and make a list of what I need to do each day, such is my memory that I feel I have to do this to make sure I don't forget anything! Oh the joys of Fibro!!!
I am however enjoying a very chilled weekend at the moment and hubby is, as I type, cooking stuffed trout for tea, which I cannot wait to eat! I just love fish! I am also enjoying a little tipple of wine too, which is great and what weekends are for! Life is good, it is what we make it, and I intend to enjoy every day as if it is my last!

Thursday, 26 April 2012

What a week!!!

Well what an exhausting week it is turning into! After having a really rough week last week, ending with my visit to be examined to see if I am still able to receive my benefits, this week has not been a much better one! I am still in agony, and I have still got a headache, and as the weekend comes upon us, I also feel exhausted! I woke this morning full of good intentions, only to feel intense pain the minute I tried to put my feet to the floor! I went for my treatment physio, which in itself is quite tiring, then I went to the office and spent a couple of hours there waiting for Rich to bring me home! I have lost my confidence with driving, so if I have to go out of Rugby I get someone to take me! I haven't been to the office for a month, and they have really done some moving around and made a lot of changes too!
I did spend some time with Rich, trying to help him sort out his accounts, as it is coming to the dreaded end of year visit to the rip off accountants, who charge us the earth and do b****r all!!! I still don't get why Rich has to spend hours sorting through bank statments, marrying them with receipts, and we still get a bill of almost 2 grand a year for the accountants! What do they do to earn it I ask myself? Very little is my reply! Money for old rope as the saying goes!
Moaning over, it has been a good week in one respect, my lovely Luke has got his new car, a Kia Sportage 4 x 4, and it is stunning! I am so pleased for him, he is working very hard to make the business a success and he deserves this reward! Even better that it arrived this week is the fact that he and Abby are off on holiday next week, and on Monday they are going to Windsor and staying at the Macdonald resorts hotel, using up some of the timeshare points we have accrued, and while they are there they are spending a day at Legoland and paying a visit to the Warner Brothers Studio to do the Harry Potter tour! I am so jealous! I just love Harry Potter! Below is a pic of the new vehicle!





I have also this last week had some other great news, my other lovely son, Aaron, has signed on the dotted line and is buying his first home! I am thrilled for him, especially as he is doing it on his own! The only down size is it is in Leeds! But, we have to learn to let go, as a mum it is hard, because as the saying goes, 'Your children hold your hand for a short while, but they hold your heart forever'! I am so proud of both my boys, and the fact that they are both hard workers and are doing well is testament to their determination to succeed, and I also like to think that Rich and I have been a big part of that! The other thing that pleases me is that they are both very happy, something that makes me happy too! This is the link to the house that Aaron is buying:
http://www.findaproperty.com/for-sale/property-10479087 

As for the Fibro, that has taken a more sinister turn in the last few days, mainly because the headache and the 'Fibrofog' seem to have taken away my memory! Yesterday I decided to make a concerted effort to have the tea done for when the men came in (or as much as I can manage, lifting heavy items in and out of the oven is a no no!!) so I decided to make a cottage pie! I cooked the meat, put in the vegetables, cut the potatoes and put them on to boil (doesn't sound much but to me that is a major achievement) and then promptly went and started doing something else and forgot all about them being on the hob!!! Enter Jess, my ever faithful companion, my wonderful black Labrador, who kept coming in to me and was, it seemed quite agitated, and was padding between the kitchen and the lounge. In the end I got up and she led me straight to the cooker! I could not quite believe it, she was letting me know that the potatoes had boiled dry and the pan was 'popping' because the water had all gone - so Jess, my faithful friend, had saved not only the tea, but possibly me too! I have now decided that if I put something on the stove again, I will set the timer on the oven and then I can't forget! Oh and Jess, she had a nice big chew as a reward, and I gave her a little bit of the cottage pie too!

Wednesday, 25 April 2012

I have returned!

I have been very lax in my use of my blog, mainly because I have been having a really tough time with my Fibro, and also because I have been quite busy! Not in the sense of rushing around, but in trying to deal with everyday life without completely losing my already fast disappearing marbles! My memory is shot, I am constantly tired, doing the simplest of tasks is becoming an insurmountable hurdle that I am fed up with trying to get over!

But I will say that I have the most incredible friends and family who are very supportive, help me as much as they possibly can, and are always there for me. So I count my blessings and carry on regardless!

I had the pleasure last week of having to go to be examined by a doctor to see if I am still 'disabled' enough to warrant having my benefits. I never knew that disabilities like mine ever went away, and was not impressed with the fact that I had to sit in a waiting room (with a drug addict and a very abusive drunk) for over an hour, for a doctor who has never met me before, to examine me. He asked me to do particular tasks, to see what my mobility was like (which on that particular day was almost non existent) and he asked me questions about how I managed at home. The form I filled in is deliberately obtuse, doesn't ask about how you manage to cook a meal (I don't manage a meal on my own), do household tasks (I have a cleaner and a lady who does my ironing), but thankfully this doctor did. He also asked me if I drive, and I told him yes but I now have to have an automatic as I cannot change gear. I have no idea what he wrote in the report he typed as we sat there, but he did tell me that it was not his decision as to what will happen, but the DWP (Department of Work and Pensions), which is ridiculous because they never see me or speak to me! I now have to await that decision and have no idea how long it will take. What these people don't understand is that Fibromyalgia is exacerbated by stress, and to say that I am stressed is putting it mildly! I worked all my life from 16 until a few years ago, I was retired medically unfit by a doctor, and now I am being made to feel like a scrounger because I am not fit to work. I cannot survive without money, and at the moment with my Incapacity Benefit, Industrial Injuries Benefit and Disability Living Allowance, I get approximately £550 per month. When I was retired medically unfit from my nursing job 20 years ago I was earning £800 a month for part time hours of 3 days a week! So to say that if I had a choice of returning to nursing or claiming benefits, which do you think I would take?

Anyway, I am now making a promise to not be so tardy with my blogs, and I will do my utmost to keep them up to date at least once a week. And I will, of course, let you all know the outcome of my benefits debacle!